Rob

It's a bummer as I know from personal experience to have to get more radiation and chemo after a ND. The good news is that the fibrosis of your neck will indeed get better with physical therapy. When I got out of surgery the left side of my neck was not only numb but felt like petrified wood. Now it only feels like Kelvar wink
Good luck with the Erbitux - I was real big on it at first but it toasted my facial skin so badly and then prevented it from regrowing so I needed to put hydrogel dressings they use on burn victims. Not as toxic as the carboplatin I took the second time around which turned out easier to tolerate. Make sure you stay on top of keeping the skin lubricated. The RO said it was the worst reaction to Erbitux out of all of my CCC oral cancer patients they have ever seen so it's unlikely yours will be so bad.


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13