Thank you all. I actually was able to sit down with my husband today and we talked a lot about how he was feeling. I told him, you are avoiding the whole issue, and guess what he was. He only head the bad things from the Drs. and is trying to deal with all this. I do have a friend who is a nurse at our school and as agreed to come and help me out when I need it. She has actually said for me to give her the numbers and she would take care of it all. I do go and buy an ace bandage to hold the tub in place. I love it already. It is so much better than tape.
I had no leakage today, and seems that the leakage comes when I am cleaning around the stoma or I hit it in the middle of the night. smile


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12