Angelia,

As long as the tube is headed downward (which is most of the time) some of your stomach contents will be in there. And when you take the cap off, you need to hold the end of the tube high or you will lose the contents...very normal. Make sure you don't sneeze or bear down while the cap is off....explosion! You can definitely clean it by pouring water into a syringe and hold it high enough to have it pour thru.

Have you finally gotten some instruction on using and cleaning your tube?? If not, your insurance should cover a home health nurse to come at least once and give you the lowdown. After that, your should also be able to receive supplies (gauze pads, supplement, tape) from them delivered to your door. Your MO can give you a script for all this...ask the nurses to get this going.

Hope this finds you feeling less pain..it should subside over the next week. Bill used a lovely wide ace bandage (the soft kind, not the rubbery one) to hold his PEG in place...the tape got so irritating to his skin. They wash well and the velcro closing works nice as long as you make sure it doesn't touch your skin. You just tuck the tube under in a U shape and it it not noticable under your closthes.

Hope this helps,

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill