I called and they sent me for an X-Ray. he also told me that he did not want the bolster to be able to move, but my nutririonist said it needs to be able to move so I can clean under it. What the?? I am getting conflicting information and am not sure what to think. The Dr. that put my PORT in told me that it is normal to have pain and soreness after a PEG for a while. I am already sick of it. Anyway, they did not see anything on the x-ray and they do not know the cause of the pain. If it has not subsided by tomorrow I will call again and see if I can get in to have him take a look at it.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12