Do not go into the weekend with your PEG hurting. Call your gastro and get into see him/her ASAP. My PEG hurt like heck when it was first put in and I just thought that was the way it was and suffered. At my one week follow up appointment the PA had a fit - the PEG was too tight. She told me I should have called after two days of pain. So call - Now! Good Luck - keep your chin up. You'll make it.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10