Do you have a little clampy thing attached to the PEG near your stomach that you are too open when you open it up to feed your self? Is that tight next to your stomach? Or is there a finger width between that and your stomach? Or is the clampy thing causing a dent into your stomach?

Do you have someone who can help you out with getting attention to this matter. The squeeky wheel gets the grease. Squeek until they hear.

DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10