Hey Tony,

Yes, need to get my head around forums and what where, don't worry about stealing the thread! Sounds like we have walked a similar path, I had a few ops in Aug to Sep...neck dissection, full tonsillectomy, wisdoms out under GA and then sedation for PEG.

Doc said that lot immediately before six weeks radio is a big factor to the fatigue as the body has just been battered for best part of three months non stop. I had the neck met that was more of a worry as it had breached where the tonsil tumour was contained still. But so far so good.

The best thing I did was from the get go stopped everything that was bad for my throat and hit the mouth washes they give so went into this as prepped as possible. All the things the docs and specialist nurses recommend to manage the side effects work well. Sadly, I recall seeing smokers having a puff between their hydration IV and before their chemo infusion...come on guys!

The taste thing recovers quick and as I needed to bulk up have had an unhealthy diet for a couple of weeks as a treat and now getting into much more sensible planned nutrition as want to start training and getting in shape. Have the niggling background fear of course but I guess that's normal.

I am mightily impressed Tony - I am 16 years behind you!



Life long none smoker, social drinker. Age 46
25 July positive node. Primary in left tonsil.
Neck Disection 27 Aug 20+ nodes removed, bilateral tonsillectomy.
Tonsil primary, other mouth, throat, tongue biopsies showed clear. Node breached but no evidence of spread in surrounding tissues or any other nodes.
T2N2aM0
Wisdom Teeth (all 4) removed mid Sep and Peg fitted first week Oct.
Started six weeks, 30 rads, six chemos total, chemo on Mondays and rads Mon to Fri on Oct 14th.