Thank you, Karen, for your reply and I'm glad to be writing to someone with very similar experience as I have (I actually empathize with you in that you have obviously gone through more than I have).

I will take up your advise and will send you a PM if I have specific questions.

Will keep in touch.

Jojo

Diagnosed: 16Feb'09
Pre-op Dx: Tongue SCCA Stage IVB (T4N2cM0)
Opn: 2Mar'09. Total glossectomy, Neck dissection (Levels I-V), bilateral; Anterolateral, Thigh flap recon'n; Tracheostomy; PEG
Decanullation: 24Mar'09
IMRT x30, concurrent with chemo (cisplatin) x3: May-Jun '09
PEG out: 23Oct'09