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Joined: Apr 2007
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Thanks everyone. I have said what I had to and that's that, I guess. I just needed to vent. Too embarrassed to discuss it outside of here...wow! that really sounds shallow, doesn't it? I don't mean to be. Love and peace to all.

**
Linda!! How have you been?


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
Joined: Jun 2007
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Donna, I like to see you vent to us. I wish I could do it publicly too. I have the idea that most are wose off than I am as like right now. All of this moving and keeping busy gets me so tired that my feet and legs say sit you dumbass.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Hey Jim!!
I miss you!!! I will try to log back on later and see if I can find you. Take a break now and again. love you.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
Joined: Jul 2008
Posts: 507
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I grew up with this poem on a plate hanging on a wall in my Grandmother's Kitchen:

"God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference." -- Reinhold Niebuhr

I'm still waiting for that wisdom!


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

Joined: Nov 2009
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On my first day of chemotherapy last summer, I was talking to a man who was going through the exact same thing that I was. He was doing radiation, too, and it was his first chemo session, as well. He had been a heavy smoker. His wife couldn't even sit there with him - she had to go out and have a smoke! I wanted to say, "you idiot! Don't you see what he is going through!"


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Joined: Apr 2007
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It does seem obscene to me to do something that may have brought you here in the first place...but it is an addiction. we spoke again the other day, i told her how i feel...she said she isn't smoking, but i have been told that before. i pray that she isn't ... i really don't want to be judgmental. she's a great fighter, tries everyday to be 'normal'--i don't know how i would cope if i were in a similar position.
God Bless her and love her.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
Joined: Apr 2010
Posts: 201
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Posts: 201
Glad you spoke again Donna! It is an addiction and one of the hardest to let go of. I quit two and a half years ago and it was one of the hardest things I have done. I still think I am missing " something" from time to time. I to will pray that she has been able to quit. Unfortunatly it is something you have to "want" to do.
Best!!


CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
Joined: Jan 2009
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Donna,

If you can't vent here...where can you vent? I don't smoke, never have, can't stand cigarettes. My mom smoked since she was 13, my wife's been a closet smoker for years...I get oral cancer and both of them start lighting up like chimneys.

Both of them say the same thing..."If YOU got OC, then it can happen to anyone so f*ck it, I'm smoking!" I had to just accept that they are going to do what they want...and I'm gonna do what i want...because when it comes down to it, lifes too f*ckin short not to. C'est la vie...


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Joined: Nov 2006
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Donna - Vent anytime you feel the need! Anything shared is always more bearable. Loving someone is not always enough for some to quit smoking. When I left home at age my Mom had tears in her eyes - she didn't want me to leave, but it was not enough for her to quit smoking and she died 20+ years earlier than others in her family who lived well into their late 90's. My non-smoker son got the cancer. My other older son who smokes never got cancer and does feel guilty that (so far) he escaped getting it. But not enough to quit. If he got cancer, I think I would be having a major explosion of anger and grief all directed at him!! And Eric - I know about closet smokers. My ex-husband would smoke in the shower! Yes, "C'est la vie" but it can also be "C'est la mort" 20 years sooner.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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