 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Frank,
I was just like you except I didn't have the lingering pain issues to deal with and I never had a Peg. I kept a bottle of water in every room of the house I normally visited each day just so I didn't have to carry one with me. I always had at least one in my car and after leaving so many behind in stores, I started carrying back ups in the car because even if I was only a mile from home I would need to take a sip. I also was weak for a long time post Tx. I did try riding my bike in my 4th month post Tx and by then the weakness was better but the dry mouth was still a burden.
Yes the recovery can be long, slow on results and drawn way out but you will improve. My first year recovery was not as noticeable as my 2nd year.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
