Nancy

Yes there is hope.
first thing is to get better pain management. I would never have been able to do either my tongue exercises or jaw exercises without the fentanyl patches. You can always wean off the opiates but you need to do those exercises now if you are going to get better. Yes, I know firsthand how frustrating it is to crush all the pills and just be using the PEG as I am still doing that also. But have faith in the exercises although if you don't do them, they can not work
So get some decent pain relief like 50mcg fentanyl patches to start off and some nice liquid Roxicet (percocet) that just goes right into the PEG. you should not be feeling this much pain and it will prevent you from proper healing. You can time the exercises for after you take the pain medication for best effect
Good luck and hang in there
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13