I'm 10 weeks post treatment. Radiation and chemo. Am using tube during day, saving throat and mouth to eat late afternoons and dinner. Throat so painful I literally have sweat beading on my forehead when I eat. Also, get white boil like thing that shows up sometimes after five bites of food on the side of jaw behind molars next to tongue. Have almost no saliva. If not talking or moving about I can keep my mouth moist, but never enough to swallow, so have to sip water and use sprays constantly.

Have a lot of fatigue. Winded if I climb a flight of stairs and I have to hold onto something because I get light headed.

This is my first post. It's nice seeing that it's normal for recovery to take a long time, but it also sucks to see that. During treatment, I thought 3-4 weeks post-treatment I would be eating like normal.


Feb. 09. SCC Left tonsil and lymph nodes Stage IV.
HPV 16+. No Surgery.
Cisplaten 6, Rad. 35
6/24/09 PET-Negative
Finally eating all my food, 2/2010.
PEG tube removed 6/2011