Senior Member (100+ posts) Joined: Mar 2009 Posts: 109 | Yes, I was very very tired for a couple of weeks post-radiation. Rest as much as you can/want.
Sandy, I never had a PEG, and I had ensure as my main food source for about a month post-tx. I am not two months out of radiation, and I am trying to eat normal food as much as I can, but it is hard. I dropped probably more weight after treatment than during treatment because I am trying to eat normal human food, but it feels like I burn more calories working at it than I consume. I still need to supplement with cans for at least 1/2 of my caloric intake, and it's not easy because I spent so much time on one meal. It's still painful. I have difficulty moving food around my mouth, it still hurts almost with any foods. It's a strong stinging sensation, as if you poured salt on an open wound. I was told that it was normal and would last quite a while. I was expecting to eat steak and chips with salsa by now. And bagels. I looooove bagels. Sigh.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
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