Thanks Karen, he has been fitted for his mask already and handled it really well. Luckily for him he's never been a person that can't tolerate stuff like that so it helps. He doesn't like the blood tests though. Will go through everything else without an ounce of whinging but when it comes to that needle he looks away and nearly squeezes my hand off. The masks are funny looking things aren't they. We were trying to come up with a super hero name for him for when he was wearing it but so far no luck. Just trying to keep our sense of humour really. But thanks again for your advise. It must have been very scary for you with the mask, with no forewarning. I know I would hate it. I hated even watching him being fitted for it.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly