| "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi, I'm wendy and am new to this forum. I found it the other night after reading the cancer council nsw Australia forum's and think it's a wealth of information. My partner was diagnosed 2 months ago with advanced oral cancer. Due to it being so extensive he is not having any surgery but will be starting with 7 weeks of radiation, 5 days a week and 3 courses of chemo. The cancer has spread to most of his tongue, the floor of his mouth, his lymph glands and his jawbone. Unfortunately he didn't see the doctor straight away and now we are hoping we are not too late. He is 43 and very fit and healthy otherwise. Even his doctor's are amazed at how he is health wise considering how advanced the cancer is. I suppose my hope from this site is that I will hear from people who have been through this and have come out the other end ok. Also I'd like as much information on treatments and side effects as possible so I can prepare to care for him in the best possible way. He is having all of his teeth out next monday and will be having a peg put in so he doesn't lose too much more weight as he is having trouble eating due to the pain. Any advise on anything at all would be greatly welcomed as I feel very overwhelmed and have no idea as to what to expect from what's ahead of us.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started. 17/03/22 lost the battle. Missed dearly
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