Thanks, Suzanne! One other thing I forgot to mention - If you need to go to the emergency room for anything(in our case, Dana's PEG tube fell out), be sure to list your medical oncologist as your primary care doctor. Dana was in the ER for 36 hours when his immune system was at its worst. After the fact, we were told by our insurance company that if we had listed the medical oncologist as the primary care doc, he would have been immediately moved to the oncology ward and had better care. BTW, the insurance company refused to pay the ER bill, and got our co-pay reimbursed because of the awful care he received!


Caregiver for Husband, Dana, age 52
DX 11/08, SCC right tonsil, Stage 3
RND, right tonsilectomy, Peg tube installed 12/08
Cisplatin X3, IMRT X35, last TX 3/09
CT scan 5/09 clear
PEG removed 8/27/09
1st PET scan clear 9/10/09
Minor surgery to repair PEG site 9/17/09