Susanne

For what it is worth, while I worried about pain in my tongue, my jaw, teeth, ear, etc , I went the whole year after TX okay. It is so human to worry about the pain meaning the cancer is back. Ironically, when my cancer did come back, it was totally painless. For your comfort, my ENT was the one who spotted the recurrence solely through what she could see and feel in her exams. In fact, one month before she felt "something worrisome", I passed a PET/CT scan with flying colors (be skeptical about PET scans). In my case, pain was not an valid indicator, in fact the recurrence was painless.(the subsequent surgery and second round of radiation and chemo unfortunately very painful) So don't let the normal tongue pain, jaw pain etc get you frazzled. Keep seeing your ENT and doctors and let them worry about watching for a recurrence Have a Happy Fourth of July.
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13