Suzanne, it's been just about 2 years for my surgery and my tongue really feels no better than it did. Everything and everything make it hurt and burn, I hate to be so blunt, but if you are like me, you want the upfront truth and not some prefab story from some that really don't know.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here