Suzanne, I don't understand why yoyr Dr said needle biopsies aren't good for this disease. I have had at least 3 of them, and it let my Surgeon know what was going on. It sure wasn't the most pleasant of things, Everytime I looked the needle was larger LOL

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here