Bruce,
from personal experience I can tell you that no amount of physical rehab, massage or exercise will fix this problem. I have a permanent script for Valium and Codiene and take them when I need them, which isn't all of the time. There are times though, that the pain is really bad. It didn't even start until I was 2 years post Tx. The cramps (more like a Charlie Horse) move around as well - sometimes under my chin and even on the "good side". It can be downright debilitating at times. A lot of it depends on the activities I am doing. Sometimes my head feels like it wants to spin around like Linda Blair in the Excorcist - all I need is some split pea soup ;-)


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)