I have been in total misery the last year and each week it gets noticably worse. It started out with a golf ball size knot and cramp on the muscle that goes from the corner of the jaw bone to the collarbone. I would get little spasms, called fisculations that have now progressed to hundreds of little flutters a minute first on the left side, progressed to the right side, across the top of the left shoulder, the right shoulder, the big muscles on the back of the head/neck and now down the entire left side along the spine. When I lay down to sleep at night, my head twitches enough on the pillow that it wakes up my wife because the whole bed shakes. I have been to so many doctors and even found a neurologist that studies post radiation patients using EMG and a couple of other tests. The most fun was the four inch thin guage needle stuck into my neck up through the underside of my chin and through my tongue. After almost 3 hours of testing I was told that I don't fit the "pattern" of the other subjects and when reviewing the sample data I noticed they all mentioned the same things but 5 years after me and they had 45 grays of radiation vs my 72. One doctor even told me they thought it would go away but it gets worse by the week. I feel like what a Parkinson patient looks like with constant movement of the head and you can see the muscles twitching with people sometimes staring at the big one on the left side of my neck when they talk to me. I can go through the list of all the drugs they have tried but honestly no drugs or PT has done anything. The medical explaation is fibrosis of the mylan (nerve casing). In layman's terms, the nerves conduct electricity and the scar tissue from the radiation reacts like a capacitor by stopping and storing the current until it builds up and then letting bursts go through. If anyone ever finds something that can treat this please let me know.

Ed