[quote=Eileen]OMG Ed, This on top of everthing else you are dealing with. It is sad that the only treatment of this rotten disease takes what were otherwise perfectly happy, healthy individuals and makes them sick as a dog. Then sometimes leaves them with permanent side effects like yours. Life is just not fair.

I hope you enjoyed your birthday and may you have many more.

Take care,
Eileen [/quote]

Thanks, Eileen. Funnny how sometimes for months on end I just think of them as "signs of life". I think the pain from the burns and only sleeping an hour at a time is taking a toll on me and I really think the 20 hour days were my personal "last hoorah" and really took it's toll on me. All the side effects got worse by the week before the long days, though, and that was part of my motivation to go for it.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023