I just read the posts here and can sympathize with all of you. I have no experience in this area and don't need it. I just like to read the older post up until the present. It makes one wonder where all the strength and energy come from we fight with daily.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here