 "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Hi Gabriele,
Sorry to hear that you are having dramas. I can certainly understand your frustration with your appointments.
More than once I have nearly donged those guys on the head...and wouldn't be surprised if I do before my mouth is back in some sort of working order again. Sometimes they just don't get it.
I agree with you that they should do a CT scan to double check that everything is OK. I have had about 3 since my original surgery to make sure that I have been clear - also I have had a couple of x-rays....
Hopefully you will have a better outcome at your next appointment in the new year.
Happy Christmas
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
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