Hi Margie,
You are helping heaps because as has been mentioned often here everyone is different and it seems you have some of the same problems. Also have the "sucking thingy " which seems to be worse when under stress.
I am sure WE are not the only ones here with the same problem but people come and go so you may not get a response at the time you post so I am happy to hear from you.
As posted previously I will be in and out of contact in the next couple of weeks. (Should be packing and getting organised now but procrastination is also part of my new norm)
Have a great one or the best the you can smile
Cheers
Gabriele
smile

History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family