 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Slim, See my Signature Line below. I also had BOT primary and mets to my nodes. I didn't have a ND nor did I opt for a Peg. If he does get a Peg he MUST exercise his swallowing muscles each and every day or those muscles may forget how to. I am a little surprised they don't recommend chemo or at least give him the option to add it. I would really ask them what their thinking is. You also need to look into HPV as that's what caused my cancer and I was a non tobacco user. We all understand your's and your husband's mental state right about now but this cancer is beatable so take a deep breath and be thankful you found the best site in the world to help get you guys through this Tx and the recovery. Ask away or just vent.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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