This is great to know I am not alone in this problem! I noticed one of you said no radiation or chemo, how about the rest of you? I ask this because my Dr. said one more and radiation. I am not to eager for that. I have a mess in my mouth you would not believe. My jaw is my shoulder, supported by a metal jaw bone. lineing of mouth my arm, so really a thin layer on total bottom of mouth. Now my tongue has scar tissue all over it. I eat very well even for all that but I am afraid of problems from radiation that this thin held together mouth cannot stand. I am prone to infections also. Any one got advice there? Did the rest of you have radiation or chemo for your problem?