Platinum Member (300+ posts) Joined: Sep 2008 Posts: 489 | I have not had 3, but I had two. The ENT swears that my first tumor on the floor of my mouth and this last tumor in my tongue were two separate tumors. The last one really took on a life of it's own after the biopsy (June) and was over 4 cm by the time we performed surgery in Sept. We tried radiation and it just continued to grow and bleed. I would wake up with blood clots in my mouth that were huge. Sad thing is we might have found it earlier, but the ENT did not think that we should biopsy one spot and that it was just a place that my partial was rubbing. My partial got so uncomfortable that I quit wearing it and now I know that can be a sign. More Might ofs.
I can surely understand after all that you have been through with that many surgeries that this must be really frustrating for you. Just keep seeing the ENT for regular check ups and as you say don't ignore anything or feel silly for asking. You are proof that it is better to ask than ignore it and insist on a biopsy if you want one.
Patty
48 SCC Floor of Mouth 7/06 9/06 Surgery, bilateral neck dissection, 58 nodes clear PT2pN0pMx 35 rad 2006 Recurred 6/08, 1 Carboplatin, 1 Cisplatin Surgery 9/08 - Total glossectomy, free flap from pectoral muscle, left mandible replaced using fibula 35 IMRT & Erbitux 11/08 4/15/09 recurrence 6/1/09 passed away, rest in peace
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