Welcome to OCF!

Your husband is recovering slowly or so it seems. To me he sounds like he is doing fine and is on track. When I was 6 wks pot tx, I still could barely eat. My diet was LaYogurt banana yogurt cuz it is so smooth. Milkeshakes can also become a dietary staple. He may still have the burning mouth and burnt taste for a while yet. A big thing right now is food's texture. The smoother the better, swallowing still is very difficult.

As far as energy goes, this area took me forever I felt to bounce back. I think I finally started feeling not quite so tired at about 4 months post tx. I still was very far from being back to normal at that point. My fatigue lasted thru my second round of OC until I started doing the hyperbaric oxygen treatments. So basically, for me I was fatigued thru 2 rounds of OC and it took me 11 months to regain my energy. At this point I feel like my energy is completely back as Im 16 months post tx.

Hoping your husband feels better soon. Have patience, its been a very long road but it does get better. Glad you registered, we are here for your support too smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile