 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Ms T
Boy is your husband one lucky man!!! You are so wonderful to do all those things.
Im not a caregiver, but a patient who didnt have much help going thru this. I basically had a driver and thats about it. Nobody checked on me about meds/food/swallowing/PEG tube/calories/hydration, and the other never ending things that go with OC.
No wonder you are beat!!!! Just wondering if you could have your husband pick up a couple of these things to care for himself. That might make it easier on you and him a bit more self reliant. I know how bad it is going thru tx but he should be able to do something to help himself. He needs to know as much as you do about his care. What would happen if you got so run down you go ill too? Please take care of yourself so you are able to care for him.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
