Thank you so much for your thoughtful replies. Stephen is on 100% tube feed right now and gets 2400 - 2700 calories a day (8 - 9 /300 calorie cans). We use the pump for over night feeds. I think he is getting better nutrition now than before DX(fussy eater). I hope and pray the dialation works...

He came off the patch about a month ago and is taking liquid oxycodone for pain. I have read some say it really wipes them out. Any other options for pain that are less potent but with sufficient pain relief? I know everyone is different but is there a ball park as to when the pain ends along with the need for meds?

Stephen has an odor to his breath and I keep on him about doing his rinses but does this mean he has an infection (it isnt thrush because the Dr saw him last week and said it wasn't and he smelled the odor as well) Is this normal during the healing process?