 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Kate,
Interesting but...I didn't have any surgery. I never lost my sense of smell or my memory of taste during or post Tx.
I lost almost all taste (except some sweetness) from appx 3 weeks into Tx till 2 weeks post Tx.
My taste slowly returned and at 16 months to present I would guesstimate that I have 100% taste for the first 3 bites or so then it slacks off to say 90%. Drinking after a bite seems to reset my taste back to the 100% / 90% pattern.
I wish I could find someone to explain this because it is a common side effect among us that didn't have to have tongue surgery.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
