Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Christine and Cindy.
I know 5 or 6 months out of treatment seems like a long time to still have all that going on but when you are that far, you still have a lot of healing to go so I am hopeful for both of you that things will get better. I was told by an ENT I went to for an opinion on my swallowing problems when I was about 9 months out that at that point I was probably about 70% healed and the other 30% could take at least another year. And you two aren't even at that 9 month point, so I figure maybe you have another 50% of your healing to go.
Jim, I was glad to read your post--not glad that you have all that going on--but just glad that *I* wasn't the only isolated case either (though my ENT has told me I'm not, it's not the same as reading of someone else still going through all the mpouth pain and irritation so long after treatment.
Honestly, I'm glad I didn't know that this (oer the severe swallowing disability) was even a possibility when I had treatment or I might have chickened out.
I have also wondered about hyperbaric treatment and whether it would help. I may ask about it at my next appointment.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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