 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 |
Wow, you sure have had a rough time of it. My cancer was only on the left side of my mouth, so my radiation was concentrated on the left cheek and top of mouth. I had mucositis for about a month after treatment stopped. The came the dry mouth which I still have but not as bad. I do have problems with trismus. I can only open my mouth 2 fingers wide and thats with doing the daily jaw exercises. My saliva and taste are back at about 75% due to the right side not getting the radiation. My doc said the right would be spared. I cant complain too much about pain, its uncomfortable sometimes, but that could be due to my recurrance.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
