Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Jim,
I had BOT and 2 confirmed nodes which Moffitt decided not to remove. My rad was concentrated (machine spent the most time) on the right and left side of my neck where the nodes are present and right under my chin. I believe it was in 5 locations to begin with (all under my chin line) and later sessions it was reduced to the 3 locations I mentioned above.
I guess I am one of the more fortunate ones as I really have no eating, drinking, mouth opening or swallowing issues and my dry mouth is nothing more than a reminder. I haven't seen any improvements since my 16th month post but I don't care at this point. Heck my torn rotator cuff from being hit by a car on my bike and the resulting surgery bothers me more than the remnants of my cancer treatment.
I didn't have the benefit of this site during my Tx and believe me I was the poster child for "don't do that" so I recovered despite myself.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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