Contributing Member (25+ posts) Joined: Nov 2007 Posts: 27 | Wow, I am glad to hear that others have that same thing. Not glad that you all have discomfort, but glad to hear it is not just me. I have pain in my tongue still and Biotene burns my mouth. My teeth rub my cheeks and cause pain and sometimes my tongue swells and it is hard to close my mouth. With that all being said, I am still to thankful and blessed to be alive. I hope some of this stuff improves, but I guess I can live with it if I have to. Christine you and I are on about the same time schedule. I am 5 months out from treatment. Praying for healing for us all.
Cindy
SCC of tongue removed 3/07 mod. left neck dissection. Tumor reappeared 6/07. Removed 8/07, right neck dissection, free flap from wrist for tongue graph. Radiation 30 (IMRT), chemo cisplatin 4 rounds finished 11/07.
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