Thanks Nelie - your story is the first to come really close to my experience and it helps to know I'm not just an isolated incident. I kept hearing and reading stories that virtually everybody got back to normal usually within six months (I remember my radiation techs telling me I should be eating pizza in two weeks - yeah right). As you I don't want to give the impression that I'm not thankful just to be alive because I am (and its great to hear you are doing well further out). My RO had in the recent past mentioned possible hyperbaric treatment (with pros and cons) but as of late not mentioned. I also have found diluted rinses with Biotene mouthwash helps a little I think to help lubricate mouth (tried several other brands - burn - also use Biotene dry mouth toothpaste). I have considered a second opinion by another ENT and RO but it is difficult with insurance (especially if I then try to switch docs for treatment). I always hope things improve but just trying to get by with the situation as it is. Good luck to you.
Jim04 - oral/gingival SCC in 2004; surgeries, radiation, 2 recurrences
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