Jim, I am someone who also has chronic mouth pain, inflamed tissue in my mouth and mucositis that has never really gone away. And I am further out than you from radiation--it has been almost 2 years and nine months (33 months) for me. My mouth is also very sensitive although I can eat most kinds of creamy soups, and a few other things, I can't have anything acidic at all--including many kind of juices. My tongue also gets irritated from things that feel really grainy on it that would feel completely smooth to someone normal--like split pea soup. My tongue also gets quite irritated from rubbing against teeth on one side of my mouth.

Like you, I take over the counter anti-inflammatories a lot. Like you, I have had it called mucositis by my dentist (don't see the RO anymore) but I wonder if my tissue is just like this permanently--my ENT has basically said, within the last year, that that is likely. I joked about taking a "scorched earth policy" against the cancer three years ago and find it sadly ironic that now my mouth and tongue really feel scorched each and every day.

I haven't posted about this much here because it is like other bad aftereffects I have, where I just seem to have it worse than the norm and I find it depressing and there's not much to be done about it it seems--I also have bad trismus and the radiation caused esophageal strictures and wore away a good part of my epiglottis, leaving me with bad swallowing problems even without the mouth sensitivity as well. I think the bottom line is some of us are just more sensitive to radiation than others and suffer more aftereffects. If you do find any kind of stuff to treat your mpouth that significantly changes things for you, though, I hope you bring info. about it here. I have been considering doing a daily rinse and swallow with aloe vera to see if that helps at all

I do use mouthwashes-Biotene and ACT several times a day and they help a little. Sorry I can't be of more help other than to commiserate.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"