I feel compelled to add a little here although I am not a professional medical person of anykind and just have lived my life. I have been a caregiver of my first husband(whom I was only married to for 15 months before his death because of a brain tumor) and now I am a cancer survivor, I like to call myself. It is harder to be a caregiver. My husband of today is so down in the dumps, although he just had emergency galbladder surgery and I was caregiver to him, HA what I could. He is very brave. I think we are both just worn down and out and doing the best we can. But it is hard both ways. I tried to keep my job being a caregiver and only 24 and it was hard. OUr families were 3 hours away and I just never will get over how hard it was to keep going and watch someone get weaker and doctors won't take your calls and there is no one to call- no help to get. It takes over your mind, for sure. I know, no one wants to come in and watch your husband because they are afraid and you cannot get away. I know. Please try to get someone to stay for 8 hours during the day, so you can grocery and just breath for a minute or you will surely go bonkers. Considering your mental health, paying a nurse for 8 hours is well worth it. Please take care of yourself so you can take care of you husband from someone who knows.


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.