Nelie,
I saw my doctor (family doctor) who used to work in oncology today. I made the appointment to discuss my anxiety issues plus to ask some questions I had. I asked her about my throat being sore and she said that it just takes time and it takes longer for others. Like some people would be back on regular food one month after treatment and some take longer. I asked even 6 months and she said some even longer.
But I will make it she said it just takes time and the radiation and chemo really put our bodies through a lot.
I was being concerned because I get these bumps on my body that do not want to heal and she said that it is because of what my body has been through and my immune system is not back to par and there is nothing I can do just time. I know my white blood count was okay but it was stated that it wasn't as high as a normal person but will get better in time.
I too still want some good food that I can taste without any pain or problems. I understand completly about that. And the water burning parts of your tongue and throat same here. It scares me that maybe the cancer is back but my doctor this morning said that it is that my body is not completely healed and it will take time and to concentrate on getting better and not to stress out.
Maybe that's why my mouth is sore because I have been worrying about the surgery (neck dissection) Sept 2. I have had lots of encouragement from the people from this site and others I meet and speak to everyday. The surgeon feels confident everything will go smoothly and I have complete faith in him.
now about your port I talked to my doctor this morning about mine because I wanted mine taken out when I had my neck disection. I was told by the surgeon who put it in that he would not do it at the same time as the neck disection because the disection was a pretty intense surgery and felt better doing it later. This is what put fear in me and I am finally getting over it. But anyway my doctor said some people do not remove the ports they live with them.
Mine does not work if I had to stay in the hospital so I want mine out. I also have the option of when I get it removed not to be put to sleep. They would just numb the area and could do it in the office and I would just feel some pulling. Not for me right now so this is on hold.
I also wanted to be asleep when they remove the feeding tube because I already had it replaced once (it got clogged) and it wasn't a good feeling. I'm a big baby when it comes to things like that.
Also my doctor suggested increasing my vitamin C intake to help me heal.
I'm thinking of you and hope everything goes well.
Love
Terry