Nelie,

As far as timeline, I am just a bit behind Minnie, although I did not have a glossectomy. My throat hurts every morning for a while when I first wake. I go through bouts of my mouth hurting and if I drink a soda, my entire mouth and throat hurts the next day until I swish for a couple of days with Nystatin. I battled thrush for many months and it caused sores in my mouth and throat that were really painful, even swallowing water, which took me almost 6 months to tolerate, by the way. I choked when I tried to swallow water so I just drank a lot of milk.

Sometime around February, about 4 months post treatment, everything changed and I even fight the teenagers for the chips and salsa now laugh . I grew some jalapenos last summer and either the massive rain we got or something made them so hot that when I tried one, I had to reach for the magic mouthwash for about an hour to ease the pain. I still have 3 jars left a year later eek !

I eat everything now and especially love tabasco on my fried chicken again. I never get more than an arm's distance from my water bottle and try to go for periods without it but can still only go about 5 minutes without a swig or my throat gets a little painful.

It sounds like you are on track for where you are. It took me about 10-12 weeks for the brown stringy goo to mellow out. I used to tell people to imagine Crystal Gayle singing..."Don't it make your brown goo clear..." When it turned clear, it was soon gone. The vomitting stopped shortly after that. I also thought Boston Market would be pretty neutral but I puked up the squash even, after it bitterly burned my throat while I ate it. Even mashed potatoes burned for months.

Hang in there.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023