Hi Terry, Thanks for the synpathy. It does sound like you and I are in similar places. I have a hard time swallowing water too--but that's because water feels like it burns some spots in my mouth. But then I also do have that pain on swallowing as well.
After I posted those posts yesterday, I did a little reading up on thrush elsewhere on the web (tried to find reputable sources such as webmd) and read in several places that basically nystatin liquid, swished and swallowed, is the "gold standard" for the treatment of oral thrush.
So I reluctantly have been making myself do the magic mouthwash more often again. I told my husband to get on my case about it because remembering to do any med four times a day is hard for me--I have all sorts of notes reminding myself about taking Tamoxifen each day too--and I only have to do that once (two pills, ground up and put through the tube at once)!
As for getting people to help carry things--you're right. I'm just not used to having to do that. Also there is an elevator I could have used in my building but it never occured to me (until I was halfway up the long flight of stairs. It's only a two story building though the second floow is actually, in height, more like a floor and 1/2 to two floors above the first for a variety of reasons.)
Terry, I don't have kids (not by choice but by chance) and I think it must be both harder and easier to go through this when you have kids to take care of. I'm sure you're less able to take it esay when you should--on the other hand, I'm sure they keep you going at times. I do have a wonderful husband who keeps me going though, and I really enjoy my job--it's something that invovles really good work where I get to chnage people's lives for the better in all sorts of ways and I have great colleagues.
Now if I could just find some food I could eat that isn'tthrough the tube and deal with this mouth pain! I had more of the really intense sharp pain in the early norning hours last night. Because my tongue is kind of sore, my husband is coming home around lunch hour and will help me call the ENT to see if maybe he will look at it one more time. I don't know if there's anything he can do.