Mica,

It sounds like you are going through about the same thing I did at about the same time, unfortunately. I happened to be about 400 miles from home, living in a motel trying to work. I spent literally all day long coughing up thick, brown goo and vomiting my lunch and breakfast. It's hard to believe it was that long ago but it was nearly 6 months. I had thrush pretty much all the time for 4-5 months. I think the burning in my throat and on my tongue was some of the toughest pain I remember. Even trying yogurt burned so bad I could hardly take it. If the medicine is making you that sick, try to go back to the Diflucan but take it a bit longer, if possible.

When you feel like getting out of the house, just do it. Getting a bit of fresh air and just walking to circulate the blood is not bad at all. I had some of the restless anxiety as you describe it. The shakiness could very well be side effects from the narcotics, too. It all takes time and even though it is tough right now, you still have a little more to endure. Hang in there, it will get better a little at a time.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023