 Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Miss Vicki, You must be a very patient person. I have read many of your posts to other people, but I didn't realize you had these things for yourself to deal with. I would ask your doctors one more time with your husband or another friend to communicate that you NEED to have progress. It seems they are ignoring simple things and to me that means switching doctors (or at least threats of that) Demand a referral if you are not satisfied. I think it is a shame that they didn't help you with mouth opening issues. That is such a common side effect and for them to ignore it is simply poor care. You are a remarkable person. 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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