Michelle:
Incompetence is what you have had to deal with, it is absolutely atrocious that this man has been misdiagnosed and left to suffer for so long. Unfortunately, he has some miserable days to look forward to soon.
Either consult with a Gastro Doc and have he/she wait in the wings or just go ahead and get a PEG tube. But , don't be fooled a PEG will be required soon into treatment. As you will notice, my tumor was almost a carbon copy of your huusbands. I had no surgery either.
Darrell