 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Michelle,
Welcome to the neighborhood! I can certainly relate to Dan not wanting to come to this site right now. I am sure his head is still reeling from all the doctor visits and the whisking into the start of treatment once everyone agreed what he is facing. It sounds like your wonderful husband has a wonderful wife by his side. That in itself is certainly a great thing. He is very fortunate to have you and your love during this rough time.
Make sure you take time for yourself so you can recharge and be all you want to be for Dan. Also, make sure Dan is taking in plenty of liquids either orally, intravenously or through the PEG tube if he has one. The side effects are much easier if the body remains hydrated.
Arm yourself with as much information as possible so you can help maneuver Dan through the maze ahead.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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