He is managing 2,500 mls of water a day now which is the target set by the oncologist,and the difference it has made to the thickness of the mucous is phenomanal.No more choking and no more spitting gallons of the stuff.The nystatin is clearing up the thrush and he doesnt seem to be having adverse reaction to the Fentanyl patch.He has now gone 12 days without any food,and nothing we try will get past the sores on his mouth,so i said lets just be glad you can get the water down and worry about food when the peg is in.Mentally he is in a dark place at the moment as he fights and fights to try and go to work.This ended in a big confrontation this morning and i told him some people at the cancer centre who had no chance of recovery would be very glad to have boredom as their only worry.I seem to be spending more and more time in my room keeping out of his way!!!An hour later he changed back into his tracky bottoms and tee shirt and came and found me .Its so exhausting all this constant battling with him.He is used to the patches now so they are not making him drowsy and i think he feels if he keeps on trying to eat he wont have to have the tube.This ends in frustration and tears and at the end of the day the poor so and so says he feels hungry.Drs appointment this afternoon and dietician ,so we will see what the next move is.The skin burning is very severe now and has caused the operation line round his neck to swell up alarmingly and his skin is bleeding from several places but the Doc says no way can he take a break because they are going for the full cure so its down to me to try and keep his skin in the best condition i can.A cheerless Mothers day has just past with all my family three hundred miles away and a thoughtless son forgetting didnt help i seem too easy to tears at the moment and i need to toughen up again Tomorrow is a watershed day for us as we reach HALF WAY


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.