what a week!!!Yesterday i put rob in the car and drove to ST Lukes 2 hours before his treatment was due.i found a radiographer, and demanded that someone see rob immediately and give them their due he was seen by the doctor at once.He has thrush in his mouth now as well as weeping sores and rivers of indescribable mucous and phlegm.His total fluid intake for the day was 250mls and he hasnt eaten for a week.He cant take the fortisip because it sticks to his mouth,and he has lost another 3 kilos.So to add to the pharmacy in our kitchen we took home mucaine,nystatin,and lemon mucilage to put with the asprin gargles the oromorph was doubled the Doctor talked through some options with us and then he had his treatment.On arrival at home we eagerly embarked on all the new meds and just one after the other he coughed and choked and cried in pain at the burning.Then he went to bed.
This morning saw no great improvement, he took an hour to expectorate all the mucous and phlegm that had accumulated over night,and then flatly refused to have any more of the oromorph which he says burns his mouth too badly,so he gargled in mucaine took his other meds,and managed to get some milk and build up down.He cant speak,and looks so unhappy,but is still being very stubborn and unreasonable about keeping to a schedule for his meds and fluid intake.When we got to the hospital today the dietician was waiting for us and also the doctors.Short version is they put him on morphine patches and also tablets for breakthrough pain and he is to get an abdominal peg next week.If i cant get his fluid intake up he has to be admitted to hospital for iv rehydration. so it is going to be a long week end and i have to watch for the morphine making him too drowsy,and him getting dehydrated and all the time there is this uneasy silence .
to date his meds are now
paracetamol
diclofenic
tryptizol
asprin gargle
nystatin
mucaine
morphine patch
morphine tablets
Difflam and build up if i can get it in him.no wonder he is fed up!!!!!