 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | My mother passed away 2 weeks after we were married, 3 months later my oldest son (12 at the time) literally showed up on the doorstep, 5 months later I was diagnosed with very active Hep C, 5 months later I started treatment for a year (from hell), 5 months later I was diagnosed with Stage IV SCC. I know my wife deserves more than a few weeks of bliss but unfortunately it hasn't happened much more than a few spurts at a time. I don't know what the future will consist of other than shoulder surgery for me next Friday. I have learned to live for today but it is very difficult to encourage someone else to do that when they keep getting the short end of the stick. I know she said for better or for worse but I really intended for it to be a bit better than it has been...
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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