 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bob & Laurie,
I am glad to see you have completed treatment and are now headed on the road to recovery. Life will get back to a point pretty close to where you were before the nightmare started. Before you know it, you will have many weeks between doctor visits with nothing to worry about. After a bit over a year I realize each time I leave the doctor's office, I can relax, sleep easy and marvel because there is nothing to worry about for 8 whole weeks!
There will be some rough bumps in the road but hopefully they will be spaced farther apart and you will get used to them.
I am hoping and praying all of your visits this week go well and you get the best possible news.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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